Friday, October 26, 2007

Playing Food Detective: Latest Update


It has been a month now since we started the Feingold Diet, stage one. Which for us, in addition to our already GFCF—mostly organic—no artificial ingredients--no preservatives—“Hippy Dippy”—“Granola Head” lifestyle really just boiled down to cutting out apples, peaches, tomatoes, and berries. For us, the biggest hardship has been the tomatoes. We really have missed those. The Prince, to tell you the truth, has not seemed to really have noticed anything. He has mentioned ketchup in passing, but accepted my feeble excuse that the store had run out. But that was his only comment. Pears have been happily accepted as a substitute for apples with no problems. Mangos for peaches. Aside from cranberry juice, the Prince has never really cared much for berries or grapes, so that was not a problem either.

Also, since we had to eliminate O’Soy yogurt due to the change in their ingredients and I have not found a good substitute yet, the Prince has not had much soy except for a little soy cheese. Soy has nothing to do with the Feingold “ADHD” theory, but is perhaps related to the GFCF “opiate” theory, as soy seems to also affect those with casein sensitivity.

The outcome? He is less hyper and a little more focused. Still more hyper than in the past, but clearly less than when we started this. The Professor is convinced he also has a "longer fuse" and recovers more quickly from frustration. I tend to agree; though the hyperactivity had been my main concern, this new "maturity" with regard to frustration level is surely a nice effect.
So now what? The Feingold or any elimination diet approach is to add back one item we had removed and see what happens. Frankly, part of me just doesn’t want to go there. Except, I hate eliminating so many things if I don’t have to. But I also hate watching the Prince’s food intolerance reactions.

I think I’ll try tomatoes first, since that is what I miss the most! And actually, the Prince didn’t eat tomato products that much, maybe ketchup or tomato sauce on pasta or pizza a few times a week. My hunch is the problem was probably either the soy, or the apples and peaches. Since school started, he used to have apples or peaches (in juice, fresh fruit, smoothies, mixed in soy yogurt) every day. I’m thinking that might have been the trouble.

My hypothesis is that the key may be a “critical mass” kind of thing. He might be able to have a few slices of apples once a week, but not every day. Another mom I know has a theory that her daughter cannot eat “red” foods. For her daughter, green apples are ok, red are not. Green grapes are ok, red are not. I haven’t checked the food chemistry on this, and this mom is only saying this is what works for her child, she is not purporting any special theory or diet, but her observations sound as if they may be related to salicylate levels too, a Feingold-related idea.

I don't mean to complain, but you know what I hate about all this? Eating is supposed to be spontaneous, joyous, fun. Like Remy in the Pixar movie "Ratatoille" who is coincidentally one of the Prince's newest heroes. Not that eating still isn't wonderful and full of new challenges and tastes, but I actually hate this detective stuff. I like to watch detectives and mysteries on tv. In real life, not so much!

What would Sherlock Holmes or Miss Marple do next? Any ideas, fellow parent food detectives?
(Miss Marple Photo from PBS Mystery! Series)

6 comments:

J said...

I wanted to ask you if you use other soy products (I know that you are not using O'soy yogurt). I have been thinking about this and since Austin is under 2 he still drinks 3 cups of milk daily and I have been using Silk soy milk. Also, someone left a new comment under my post "all rice dream is gluten free". She said that she thought the peptides in soy milk were similiar to soy and wanted to know if she should be avoiding all soy in going GFCF. Any ideas. Sorry this really doesn't relate to your post!

GFCF Mommy said...

While I have read that soy peptides are similar to casein, I think it is really an individual thing with each child. Only now do I think that my son may have a soy problem. I gave him O'soy yogurt for 3 years with no problems.

Right now we use soy "cheese" products and that's about it. The Prince drinks rice milk, though we did try Darifree (potato-based) in the past. Darifree is creamy and nice to cook with but it didn't agree with his tummy and it was kind of a pain to have to mix it up every week. Also you have to mail order it, though you can get it in bulk.

As a toddler when we first started, I did give the Prince Silk Soy enriched "very vanilla" and he liked it fine. But when he got older he wanted "whiter" milk and he seemed to prefer the rice milk, so we switched to that.

I am actually starting to wonder if the Prince's gluten and casein problems "masked" his issues with other foods. And that's what we are seeing now. It's frustrating, as I said, I thought we had it all figured out.

Not sure if I answered your question, but yes, soy can be an issue for ASD children. I just think you need to observe to see if that is the problem. If you can find a rice alternative that your son likes, rice is less reactive but also can cause constipation problems if they have a lot of rice in their diet overall. Always something, isn't it?!

J said...

Thanks for all the input. We are using the silk "very vanilla" too. I attended an online seminar from a DAN dr. and he was talking about the GF/CF/Soy Free diet. But at this point, I am unsure of how much harder that would make things. Most labels of Austin's food say "contains soy".

Elissa said...

Hi Katherine,

I hope you don't mind me jumping in on this conversation; my son has a reaction to soy products (tests have shown that soy affects him more than gluten and dairy) and I haven't yet been able to find any alternative to yoghurt or cheese.

I nearly went around the twist when we first removed all these things from his diet (as you could well understand) because most products that don't use dairy or gluten use a soy substitute.

Here in Australia we have Orgran products that are free from gluten, dairy and soy.

I agree, playing detective is a nightmare and really takes the fun and spontenaity out of eating, but like you, I'm not really prepared to face the alternative!

So, J - removing soy is definitely a huge challenge, but like GFCF it eventually becomes a part of life (if you can get through the transition process).

Elissa.
xx

Julie B said...

Hello,
just stumbled upon your blog and have enjoyed reading it! I can truly relate to playing "food detective" , as it took us almost 16 months to discover my daughter's big ones...we are still discovering foods that affect, but she is now finally gaining weight after we eliminated dairy, soy, and gluten. I am still breastfeeding so I also also avoiding all those things as well. I can't even remember a time when I could just eat what I wanted!
Anyway-I wanted to tell you that Ricera came out with a rice yogurt, that is soy, dairy and gluten free. My daughter loves it.
Hope that helps!

Queenbee said...

I have now found " Whole Soy Yogurts" the have a note on it claiming GFCF!!!!! I did this because the Silk brand had some shady ingredients listed.

http://www.wholesoyco.com/products.html

For now, this is our daily supplement hider!